Title: To assess the need of palliative care in children with cerebral palsy using Paediatric Palliative Screening Scale (PaPaS Scale)
Authors: Dr Vishal Jamwal, Dr Gaurav Sharma, Dr Pancham Kumar, Dr Garima Sharma
DOI: https://dx.doi.org/10.18535/jmscr/v7i8.66
Abstract
Palliative care aims to cloak the patient’s symptoms and provide comfort even when treatments aimed at cure are no longer possible. It begins when illness or the life limiting condition is diagnosed, and continues regardless of whether or not a child receives treatment directed at the disease. A number of scales designed to improve recognition of the need for palliative care eg. Edmonton Symptom Assessment Scale (ESAS), Paediatric Palliative Screening Scale (PaPaS Scale) etc. Based on these palliative care need is assessed and further care is provided.
The aim of this study was to assess the need of palliative care in children with severe cerebral palsy.
References
- World Health Organization. Cancer pain relief and palliative care in children. Geneva: WorldHealth Organization, 1998.
- woods2010 ref : ACT/RCPCH a guide to development of child’s palliative care services: a report of the joint working party , Bristol 1997)
- Glare PA, Eychmueller S, McMahon P: Diagnostic accuracy of the palliative prognostic score in hospitalized patients with advanced cancer. J Clin Oncology. 2004, 22 (23): 4823-4828. 10.1200/JCO.2004.12.056.
- Maltoni M, Caraceni A, Brunelli C, Broeckaert B, Christakis N, Eychmueller S, Glare P, Nabal M, Vigano A, Larkin P: Prognostic factors in advanced cancer patients: evidence-based clinical recommendations–a study by the Steering Committee of the European Association for Palliative Care. J Clin Oncology. 2005, 23 (25): 6240-6248. 10.1200/JCO.2005.06.866.
- Hutton JL & Pharoah POD (2006) Life expectancy in severe cerebral palsy Arch Dis Child 91: 254- 258
- Baird G, Allen E et al (2011) Mortality from 1 to 16-18 in bilateral cerebral palsy Arch Dis Child 96(11): 1077-1081
- Crichton JU, Mackinnon M & White CP (1995) The life-expectancy of persons with cerebral palsy. Dev Med & Child Neurol 37(7): 567-576
- G, Hutton JL & Pharoah POD (1999) Cause of death in cerebral palsy: a descriptive study, Arch Dis Child 81(5): 390-394
- Paneth N, Hong T, Korzeniewski S. The descriptive epidemiology of cerebral palsy. Clin Perinatol 2006;33(2):251–67.
- Glenn MB, Whyte J. The Practical Management of Spasticity in Children and Adults, Lea & Fegiber, Philadelphia 1990.
- Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society, Delgado MR, Hirtz D, et al. Practice parameter: pharmacologic treatment of spasticity in children and adolescents with cerebral palsy (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology 2010; 74:336.
- Dahl M, Thommessen M, Rasmussen M, Selberg T. Feeding and nutritional characteristics in children with moderate or severe cerebral palsy. Acta Paediatr 1996; 85:697.
- Reilly S, Skuse D, Poblete X. Prevalence of feeding problems and oral motor dysfunction in children with cerebral palsy: a community survey. J Pediatr 1996; 129:877.
- Andrew MJ, Parr JR, Sullivan PB. Feeding difficulties in children with cerebral palsy. Arch Dis Child Educ Pract Ed 2012; 97:222.
- Sullivan PB, Lambert B, Rose M, et al. Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study. Dev Med Child Neurol 2000; 42:674.
- Olshansky S. Chronic sorrow: A response to having a mentally defective child. Soc Casework 1962; 43:190.